Video | Patient Story: Marcel (Child With Muscular Dystrophy)
Video | Patient Story: Marcel (Child With Muscular Dystrophy)
Oct 31, 2013
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"To live, you have to breathe." Freddy Loinaz-Lopez lives with Duchenne Muscular Dystrophy, a condition that affects his ability to move and to breathe. Penn Medicine's Fishman Program allows Freddy to receive treatment at home so he can spend his time doing what he loves: making music. Listen to his song, "Breathing Is Everything", and learn more about how the program is helping patients like Freddy from Director John Hansen-Flaschen, MD. Watch Freddy's full music video here: https://www.youtub
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9 Important Facts About Muscular Dystrophy - HRF
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83K views · 46 shares | In the Spring of 2018, within a matter of 8 weeks, brothers Caleb and Duncan were both diagnosed with Duchenne muscular dystrophy. Watch their story. | Sarepta Therapeutics | Facebook
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"The GPs unfortunately don't have enough knowledge about Duchenne." Satish's son Vinny lives with Duchenne muscular dystrophy. Together, they've felt the impact of a lack of understanding about the condition across healthcare professionals. This includes poor communication between hospitals and GPs, medical equipment not suitable for Vinny's wheelchair, and inaccessible transport between appointments. Learn more about Satish & Vinny's story 👇 | Muscular Dystrophy UK
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