Muscular Dystrophy
Muscular Dystrophy
Apr 30, 2018
nationwidechildrens.org
Anne was diagnosed with Charcot-Marie-Tooth (CMT) disease aged 5. Growing up, she was told it was the most common inherited neurological condition which no one had heard of. She wants that to change. Learn more about Anne's story this #CMTawarenessmonth ▶️ | Muscular Dystrophy UK
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Anne was diagnosed with Charcot-Marie-Tooth (CMT) disease aged 5…
2.1K views5 months ago
FacebookMuscular Dystrophy UK
“I have CMT… and I like to learn how to improve my life and help me with the disease. This is the place to do it.” – Attendee living with Charcot-Marie Tooth disease at our 2023 information day. Join us at an information day. Hear from experts about a range of different topics, find out more about the help and support we offer and meet other people affected by muscle wasting and weakening conditions. England. Saturday 9 March in Birmingham: https://rb.gy/q3rn7r Scotland. Saturday 23 March in Sti
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“I have CMT… and I like to learn how to improve my life and help m…
530 viewsFeb 13, 2024
FacebookMuscular Dystrophy UK
When Claire was diagnosed with Charcot-Marie Tooth (CMT) at 12 years old she was having regular appointments and physio sessions. But now, at 40, she hasn't had any consistent appointments since she moved to adult services 22 years ago. 🧡 "Living in Wick, in the Highlands, resources and knowledge about conditions like mine are limited to say the least," she said. By not having regular appointments, Claire doesn’t receive any guidance on how to manage her symptoms. Claire's 16-year-old son also
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When Claire was diagnosed with Charcot-Marie Tooth (CMT) at 12 y…
850 viewsNov 24, 2024
FacebookMuscular Dystrophy UK
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