Re-sharing part of our journey for Noonan Syndrome Awareness Month 💛 One of the most common and serious features of Noonan syndrome is congenital heart disease or failure— and this video shares a glimpse into Houston’s heart health journey. From early diagnosis, specialist appointments, ongoing monitoring, and the constant background worry that comes with a child’s heart condition… this has been a huge part of our life since before he was even born. I’m resharing some of our videos from last ye
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