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0:23
THE STORY OF JOSÉ SANFILIPPO
3K views
4 months ago
YouTube
FÚTBOL - HISTORIA DEL PROFESIONALISMO
1:45
What is Sanfilippo Syndrome? Signs, Life Expectancy & Current Treatments
83.6K views
3 months ago
TikTok
saving_liv
1:29
Understanding Sanfilippo Syndrome: A Genetic Disorder
393.1K views
6 months ago
TikTok
saving_liv
1:07
The Sicilian Fighter Turned Mafia Soldier – Paulie Doyle Explained
2.5K views
4 months ago
YouTube
Real Mob Stories with James Proctor
2:57
The historic fight between Sanfilippo and Goycochea
44.5K views
4 months ago
YouTube
Telefe Noticias
2:03
"El Nene" José Sanfilippo has died at 91
3K views
4 months ago
YouTube
Telenueve
0:32
SANFILIPPO AND HIS MEMORY OF HIS FATHER WITH THE PLANKS OF THE GASOMETER 🏟️🔵🔴
6.4K views
4 months ago
YouTube
La Cicloneta
2:39
It’s incredibly rare to hear directly from someone living with Sanfilippo. Most children lose their speech as the disease progresses in early childhood. But this remarkable 18-year-old with Sanfilippo type B is still able to speak for herself, a gift that only a small number of families ever get to experience. Bridget’s journey is very different from Sadie’s and from most children with Sanfilippo, who decline much more quickly, but it’s no less tragic. In the prime of her life, Sanfilippo is sta
265.4K views
10 months ago
Facebook
Saving Sadie Rae: Cure Sanfilippo
0:49
Murió José Sanfilippo, "el nene": goleador argentino y símbolo de San Lorenzo
15K views
4 months ago
YouTube
CLARÍN
0:53
Sanfilippo Syndrome is genetically inherited from both parents. Children are born with the disease after receiving two gene mutations on a specific gene (one mutation from each parent). We had no idea that Sanfilippo Syndrome existed or that Haidyn was sick until she was diagnosed at age 5, after years of a lengthy medical history and unanswered questions. It was not tested for during pregnancy or at birth. She was first diagnosed with autism at age 3, as the brain damage began to cause sensory
72.5K views
Jan 3, 2023
Facebook
Carrie & Haidyn Fowler
0:59
SAYING GOODBYE to SANFILIPPO 🕊️
13.2K views
4 months ago
YouTube
El Archivo Futbolero
1:42
We are at $1.2 million raised! $2.6 million still needed by Thanksgiving to get life-saving treatment to Sanfilippo B children 🙌🏼 Let’s make history! We believe God placed us in this moment on purpose — not just to fight for our kids, but to open the door for the children who come after them. A treatment exists. The only thing standing between heartbreak and hope is a community willing to move. When you share this, when you pray, when you give — you're not just helping our family. You're becom
936 views
11 months ago
Facebook
Poppy and Oliver Kempf - Fighting Sanfilippo
0:24
Living with Sanfilippo Syndrome: A Mother's Heartfelt Journey
6.9M views
Dec 8, 2023
TikTok
haidynshope
1:04
Understanding Logan's Timeline and Sanfilippo Life Expectancy
4.5M views
Apr 22, 2024
TikTok
love_logan07
1:11
Eyebrow Evolution and Sanfilippo Awareness
1M views
Jan 20, 2025
TikTok
saving_liv
0:41
Sadie loved singing, and now, to see the confusion in her eyes when she can’t get the words out is devastating. I’m so tired of watching Sadie and other children lose things they love because of Sanfilippo syndrome. #sanfilipposyndrome #dementiaawareness #childhooddementia #iloveyou #preciousmemories
3.9M views
May 12, 2025
TikTok
savingsadierae
1:05
Understanding Sanfilippo Syndrome in Children with Childhood Dementia
1.3M views
Jul 2, 2024
TikTok
haidynshope
8:10
Understanding Sanfilippo Syndrome and Its Impact
1.1M views
Aug 1, 2025
TikTok
saving_liv
1:00
The very beginning of our Sanfilippo journey💜 #lydiamarie #lovinglydia #sanfilippotok #sanfilipposyndromeawareness
3.9M views
Apr 27, 2024
TikTok
hopeforlydia
1:12
MURIÓ JOSÉ SANFILIPPO José Francisco Sanfilippo murió a los 91 años. El “Nene” fue uno de esos delanteros que se ganó un lugar en la historia y quedará por siempre asociado en la memoria a San Lorenzo de Almagro, el club en el que brilló.
119.2K views
4 months ago
TikTok
argentina12ok
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