Dec 20, 2024 · Hear stories and find community at BreatheCon. BreatheCon is a two-day virtual conference created by and for adults with CF. Register today to hear inspiring firsthand accounts, share your own story, and spend time with others who understand life with CF.

Compass is a personalized, one-on-one service that provides people living with cystic fibrosis and their families a partner in dealing with challenges related to life with CF, no matter where you are in your CF journey.; AIRS-accredited Compass case managers help with complex challenges, including understanding insurance basics, troubleshooting …

The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.

To ensure that people with CF continue to experience steady gains in length and quality of life, the Foundation helps its accredited care centers provide a standard of CF care with guidelines. We base guidelines on the latest research, medical evidence, and …

The CF Foundation Patient Registry collects information on the health status of people with cystic fibrosis who receive care in CF Foundation-accredited care centers and agree to participate in the Registry. This information is used to create CF care guidelines, assist care teams providing care to individuals with CF, and guide quality improvement initiatives at care centers.

Cystic fibrosis is a genetic disorder that affects the lungs, pancreas, and other organs. Keep reading to learn how to treat and live with CF. Overview of CF Read a quick guide about cystic fibrosis Cystic fibrosis is a genetic disorder that affects the …

CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.

People with CF are living longer than ever before with the median predicted survival age continuing to increase. Regular Care Center Visits Visiting your care center at least four times a year is a very important part of managing your health with CF. During these visits, your CF care team will work with you to develop and revise your treatment plan and monitor your health.

The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.

Nov 9, 2021 · Yankaskas JR, Marshall BC, Sufian B, Simon RH, Rodman D. Cystic Fibrosis Adult Care: Consensus Conference Report. Chest. 2004 Jan; 125(1 Suppl):1S-39S. Improved care has led to a steady increase in the number of adults with cystic fibrosis. The Cystic Fibrosis Foundation Patient Registry ...