A little boy was diagnosed with a rare muscle-wasting disease after getting severe leg cramp at a laser tag party. Evan Winter, seven, was slow to progress as a baby and did not walk until 20 months ...

Norwegian documentary, The Remarkable Life of Ibelin, directed by Benjamin Ree, chronicles the life of Mats Steen, who had ...

As mothers of children with this disease, we have wept helplessly in recent months as friends — fellow members of a club we ...