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Navigating my newborn’s CF diagnosis during the height of the COVID-19 lockdown was one of our hardest moments — yet it was only the beginning of a journey filled with unexpected joy and hope.
Living with cystic fibrosis while facing homelessness has tested me in every way. However, through it all, I’ve found strength, purpose, and the unshakable belief that I must keep going — for myself ...
It’s three weeks before the Kansas City Great Strides walk as I’m writing this, and I’ve decided my husband and I will take our twins to the walk this year. We haven’t been to one since before our ...
This report offers key insights from last year’s CF Foundation Patient Registry data. The Registry includes data from people with CF in the United States who visit CF care centers and agree to ...
CF Awareness Month is a time to reflect on the progress we’ve made together — and how we got here. These photos from the Cystic Fibrosis Foundation’s archives highlight the strength of our community ...
Dear Speaker Johnson and Leader Jeffries: The underlying organizations write to raise concerns about the House reconciliation package which will result in the loss of health coverage for at least 13.7 ...
I would have argued the newborn screening result until my face turned blue. There was no way my baby had cystic fibrosis. My prenatal screening was negative, and I believed it showed that my son was ...
On behalf of millions of patients and consumers we represent across the United States who face serious and chronic health conditions, our organizations urge Congress to oppose cuts that will terminate ...
When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes. I thought I ...
Undergoing two double-lung transplants before the age of 22 was never something I thought I would face. But through the ups and downs, I found motivation in giving back to my community. I never ...
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