When Valerie Pappas Llauro’s 5-year-old son Alexander was diagnosed with Duchenne muscular dystrophy – a rare and fatal form of the genetic illness that primarily affects boys – doctors said ...

Melanie Sanford fought to get her son Hudson a breakthrough gene therapy to stop the progression of the fatal disease Duchenne Muscular Dystrophy. She rushed to get him access just days before he ...

Duchenne muscular dystrophy (DMD) is a severe genetic condition characterized by progressive muscle weakening. People with DMD typically only live into their 20s, but life expectancy has been ...

Duchenne muscular dystrophy (DMD) ... The condition is linked to the X-chromosome, which means DMD mostly affects people assigned male at birth. DMD affects approximately one in 3,600 male infants.

Being a caregiver can be a stressful, yet rewarding, experience. While you value your time with your child, some unique challenges come with caring for someone with Duchenne muscular dystrophy ...

Deb Jenssen has two girls showing signs of Duchenne muscular dystrophy, a disease that for so long, people thought only affects boys. Shut out of clinical trials, the family struggles to find ...

According to the Muscular Dystrophy Association, the prevalence of Duchenne — that is, the number of people currently living with the condition — is about 6 per 100,000 people in Europe and ...

Duchenne muscular dystrophy (DMD) is the most common type. It’s caused by flaws in the gene that controls how the body keeps muscles healthy. The disease almost always affects boys, and symptoms ...

Duchenne Muscular Dystrophy affects 12,000 to 15,000 children and young adults in the United States and about 300,000 worldwide. It's caused by a mutation in the dystrophin gene, which makes a ...

Charlie has Duchenne muscular dystrophy, a degenerative genetic disease that, until recently, has guaranteed death by early adulthood from cardiac or respiratory failure.Like all people with ...

PARAMUS, N.J., Nov. 21, 2023 /PRNewswire/ -- NS Pharma, Inc. ("NS Pharma") today announced the launch of Duchenne Heroes a program created to raise awareness and champion the voices of people ...

Symptoms of Duchenne Muscular Dystrophy DMD symptoms usually start by age 6. Symptoms may begin as early as infancy, but most boys don't have any symptoms in the first few years of their life.